DIGNITY for deeply forgetful people

How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of—and find renewed hope in—surprising expressions of selfhood despite the challenges of cognitive decline. In Dignity for Deeply Forgetful People Post offers new perspectives on the worth and dignity of people with Alzheimer's and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. He reveals who they still are underneath the losses and explores the many ways to stimulate and connect with that continuing self. At a time when recent drugs to cure or slow Alzheimer’s are showing little effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding an ethics of care on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He covers 16 practical issues from diagnosis to hospice care based on 30 years of interacting with caregivers in the US and Canada and advocates social and economic justice in an American system where caregivers and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," designed by Rev. Dr. Jade C. Angelica to enhance the quality of life for deeply forgetful people, reduce stress and increase confidence for caregivers, and inspire a hopeful attitude for all.