In 2012 inspired by her son’s diagnosis, Emily founded Duchenne UK, a charity dedicated to finding a cure for Duchenne muscular dystrophy. Coming from a background in TV news, Emily shares how their successes in raising millions of pounds to support research were in part due to her understanding of the media from within and having connections to high-profile journalists. She discusses some of the progress, such as groundbreaking drug treatments and the development of exoskeletal suits to assist the afflicted, and shares about the impediments they face, from battling slow bureaucracy for drug approvals to the ticking clock Duchenne puts on to all those suffering from the condition.
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