EP#163: Disability Advocates Speak Out w/ Kelly Berger & Avery Roberts

In this episode, Rick shares his interview with Kelly Berger and Avery Roberts, community engagement leaders and fierce disability advocates at Cure CMD, a nonprofit advancing research and awareness for congenital muscular dystrophies.

Kelly and Avery open up about their deeply personal journeys through misdiagnosis, medical adversity, and social exclusion—and how they transformed these challenges into platforms for empowerment, education, and visibility. Their story of connection, purpose, and advocacy is a powerful reminder that authentic representation and inclusion start with sharing your voice.

Together, they’ve reshaped what it means to live boldly with disability, sparked systemic change on Capitol Hill, and inspired others to discover their own strength—one conversation, one webinar, one small act of kindness at a time.

This episode is a MUST-LISTEN! 🎙🚀 

We will discuss the following:

⭐️ Kelly and Avery explain why they don’t see themselves as “heroes”—and how true inspiration lies in achievements, not assumptions.

⭐️ Both women detail their “diagnostic odysseys,” how they found each other, and how rare disease communities provide much-needed belonging.

⭐️ From Capitol Hill to social media, they’re challenging how society views accessibility and what disability advocacy really looks like.

⭐️ Avery’s history-making performance as the first wheelchair dancer at Radio City Music Hall is just one example of inclusion done right.

⭐️ Their long-distance bond and shared mission show how genuine connection fuels resilience, leadership, and lasting change.

& more...


Know more about Edmandah:

Cure CMD Website: https://www.curecmd.org/
Donate to Cure CMD: https://www.curecmd.org/donate
Cure CMD's Scientific & Family (SciFam) Conference: https://www.scifam.info/

Avery's Instagram: https://www.instagram.com/avery.nicole916/
Avery's LinkedIn: https://www.linkedin.com/in/avery-roberts-334024354/

Kelly's Instagram: https://www.instagram.com/thekellyberger/
Kelly's LinkedIn: https://www.linkedin.com/in/thekellyberger

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