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October 1, 2023 46 mins

Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome.  

DSC2U: www.DSC2U.org

DSALA: www.DSALA.org

DSALA Contact:

(818) 786-0001

info@DSALA.org

NOTES FROM DR. SKOTKO:

  • We have written a summary paper for the lay audience to help them access and understand all of our research findings (available in English and Spanish).
  • We have created ready-to-go Facebook posts (English and Spanish) and Twitter posts (English and Spanish), summarizing our research findings.
  • We also developed this Awareness Building event toolkit, so that Down syndrome groups can continue to host meaningful diversity dialogues in their community.  We provide ready-to-go materials and easy action steps.
  • Albert Pless and I gave Grand Rounds at UCSF Benioff Children's Hospital and our own MGH Genetics Division about our research findings.  The recording for this presentation is available for viewing

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/01/159-dsala-and-dsc2u/2/

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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