June 13, 2023 • 16 mins
Please join our guest host, Dawn Lobban, Head of Envision the Patient team at Envision Pharma Group, and guest Sharon Terry, President and CEO of Genetic Alliance, a not-for-profit organization that works to provide programs, products and tools for ordinary people to take charge of their health, as they continue a discussion started at the 2023 ISMPP Annual Meeting. Sharon’s keynote address on the first day of programming set the tone for the meeting theme of Patients First. Sharon describes her background and how she became involved in rare diseases, patient advocacy, and patient authorship. Learn about the importance, barriers, and solutions to involving more patients in medical communication and publishing.
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