What happens when women receive a prenatal diagnosis of Down syndrome? How does that diagnosis affect those women and their families? How does it affect our whole society? Stephanie Meredith joins Amy Julia Becker for a conversation about her new report on the bias doctors have when giving a prenatal diagnosis of Down syndrome, including:
- The landscape of prenatal testing
- How doctors approach it and what they could do better
- Why these conversations matter outside the Down syndrome space
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FREE DOWNLOAD: 5 THINGS I WISH I'D KNOWN WHEN OUR DAUGHTER WAS DIAGNOSED WITH DOWN SYNDROME
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Guest Bio:
Stephanie Meredith is the Director of the National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute and co-author and lead author of numerous studies, including “The impact of implicit and explicit bias about disabilities on parent experiences and information provided during prenatal screening and testing” in the Disability and Health Journal. In addition, she is a 4th-year doctoral student at Georgia State University with a focus on disability and health and the mother of a 23-year-old with Down syndrome and two younger daughters.
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Connect Online:
- www.lettercase.org
- Instagram: @lettercaseorg
- Facebook: @lettercaseorg
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On the Podcast:
- Report in the Disability and Health Journal
- TIME: Doctors Don’t Know How to Talk About Down Syndrome
- Lettercase
- HHS and Disability Discrimination
- NYT: When They Warn of Rare Disorders, These Prenatal Tests Are Usually Wrong
- S7 E3 | Netflix’s Down for Love with Robyn Paterson
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TRANSCRIPT: amyjuliabecker.com/stephanie-meredith/
YouTube Channel: video with closed captions
Season 7 of the Love Is Stronger Than Fear podcast connects to themes in my latest book, To Be Made Well, which you can order here! Learn more about my writing and speaking at amyjuliabecker.com.
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