Jawanda Mast, Wife, Mom and Grassroots Advocacy Manager of National Down Syndrome Congress

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

In this episode I had the pleasure of interviewing Jawanda Mast. 

Jawanda is the National Down Syndrome Congress (NDSC) Grassroots Advocacy Manager. She has been involved in disability policy advocacy since her daughter Rachel was born with Down syndrome over 24 years ago. 

Jawanda has graduate and undergraduate degrees from the University of Arkansas and was honored with the 2017 Alumni Community Service Award for her body of advocacy work.  She spent eight years advocating for the passage of the federal ABLE Act. She has provided written and oral testimony on a variety of federal and state policy issues and has served on many state-appointed committees.  

Jawanda believes we all have a story, and we can use those stories to impact change at all levels. She is passionate about the meaningful inclusion of individuals with Down syndrome and other intellectual disabilities in all aspects of the community and has presented at many conferences.  

Jawanda says her work is a #laborofloveandconviction. To learn more about NDSC got to: https://www.ndsccenter.org/

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Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/

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