225 Navigating Autism and PDA (Pathological Demand Avoidance, or Pervasive Drive for Autonomy)

Navigating Autism and PDA (Pathological Demand Avoidance or Pervasive Drive for Autonomy)

 I discuss being diagnosed Autistic with a PDA (pathological demand avoidance) profile. I express frustration with the DSM criteria for ADHD and autism, as I don’t see myself in the criteria. I highlight the common misdiagnosis of PDA as oppositional defiant disorder in children, emphasizing the need for a deeper understanding of neurodivergent experiences. I advocate a shift from viewing differences as deficits, and the importance of recognizing the unique perspectives of neurodivergent individuals.

HIGHLIGHTS

Summary

In this episode, Patricia shares her personal reflections on being diagnosed autistic and the challenges she faces with Pathological Demand Avoidance, (PDA). Patricia prefers Pervasive/Persistent Drive for Autonomy instead. She discusses the differences between autism and HSP (Highly Sensitive Person) and emphasizes the importance of understanding the lived experience of autism. Patricia also explores how PDA affects parenting and the need for low-demand environments. She reflects on her struggles with holiday traditions and the importance of self-acceptance and embracing stimming. Additionally, Patricia discusses the impact of seasonal changes and offers insights into managing PDA in daily life. She concludes with a book she enjoyed reading that has coded autistic characters in it.

Some of the challenges and awarenesses about being autistic and having a PDA profile:

·         Patricia shares her frustration with the DSM criteria for ADHD and autism, as she does not see herself in the criteria. It was written for white boys who externalize their symptoms. Many late-diagnosed, high-masking folks tend to internalize their presentation, and they go undiagnosed and don’t see themselves in the criteria, which needs to be updated.

·         Patricia emphasizes the importance of understanding the lived experience of neurodivergent individuals and the need to look at differences rather than deficits.

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